Rights & Responsibilities + Accountability & Transparency

The sun rose brightly today, bringing light and energy around the world.
Today marks a new day for people living in communities where the the UN's Right to Health is still far from being a reality. This first of August, the World Care Council begins a series of research studies on the State of the Stakeholding, starting with an important survey commissioned by the Stop TB Partnership to provide insights into why Component 5 of the WHO Stop TB Strategy, Empowering Patients and Communities is "not getting measured and not getting done", as Dr. Chan, DG of WHO recently pointed out. 'Broad based and cross cutting', it may change our understanding of 'partnerships in health' and other jargon that sound good, look good but remain paper tiger policies.

Today also marks the first 90 days of groundbreaking operations for the iMAXi Cooperative, a new organization developing innovative tools to increase the participation of people from the community in public health issues and institutions. The World Care Council and the iMAXi Cooperative are 'brother and sister' NGOs, born from the union of Rights & Responsibilities / Accountability & Transparency with the Greater Involvement of People in Public Health.

A growing collective of PLHIV, patients and professionals feel the warmth of today's rising sun, and in the light, can see accessible, equitable and open healthcare on the horizon. Learn more and join the march to make this vision a reality, asap.
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What do China and Kenya have in common: Violate human rights...

I read on TB patients in prison in kenya and it a violation of human rights.
I read below on person with HIV in prison in china and its a violation of human rights.
What do China and Kenya have in common - Violating human rights, detaining people with disease, giving no respect, using criminal system to 'fix' the error and problems the governments had make.
Maybe it time to put the jailers in jail.
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Dear all, I have attached the information related with Tianxi the young AIDS activist in China who now are in detention. Our group (Beijing AIZHIXING Institute and other Chinese AIDS groups are calling for his release as soon as possible. In the attachment you will find our calling letter, media report from AP, AFP, and South China Morning Post . I will update this case. See you soon, My best , Rayila Beijing AIZHIXING Institute -- If it happens to anyone ,it happens to everyone! Love,Knowledge ,Action
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Police detain Aids activist, claiming he damaged hospital
An Aids sufferer turned activist who contracted the disease as a child has been detained by police in Henan province, ostensibly for damaging hospital property, his parents said yesterday.

Outrage Over Jailed Kenyan TB Patients! Human Rights Denied

Update 30.08.10: This outrage has been confirmed, and is in fact much worse than we had all thought. It all began with the posting below...
- It appears that people with TB are being imprisoned by the Gov't instead of fixing the failing Kenyan TB program. Blaming patients for Program failures is no longer acceptable, and imprisoning them is an outrageous violation of their human rights. The World Care Council has written to Dr. Sitieneii seeking urgent clarification.
NAIROBI, Kenya — A court has sentenced two tuberculosis patients who skipped their medications to spend eight months in prison to avoid spreading the deadly disease among the public, a senior health official said Saturday. The male patients were locked up in Kapsabet prison in western Kenya nearly 10 days ago to make sure they take their pills as prescribed and do not infect others, said Joseph Sitienei, the head of tuberculosis and lung diseases at the public health and sanitation ministry.
A person whose immune system is compromised by HIV is particularly susceptible to tuberculosis, which is caused by bacteria that usually attack the lungs. The disease is spread through the air when an infected person coughs or sneezes. Sitienei said the judge who sentenced the pair invoked a rarely utilized law that allows the government to jail patients with infectious diseases to safeguard the public health.

MDGs and Linkages between the Targets and Human Rights

From the Office of the United Nations High Commissioner for Human Rights (OHCHR) a new report has been published. Human Rights and the Millennium Development Goals in Practice : A review of country strategies and reporting. At the moment a massive advocacy push is needed, this document is very useful for understanding where we are, and where we must go in each country. Know Your Rights - Know the MDGs. The link to the report is found at the very bottom. Below is an interesting table that makes it clear.

Raising the Alarm and Ringing Out for Action

The Alarm bell is ringing. Hard times hit hardest the well-being of poor communities. As public health funding is under severe pressure in national budgets around the world, and international donors are cutting back or cutting out, we think its time to take extraordinary steps to increase the involvement in local health issues of many more people in communities affected by this roll back. Even before the downturn in resources, the road was a steep uphill climb towards realizing the Right to Health for all.

Vote Yes to fully fund the Global Fund?

It's time, once again, to speak-up for the Global Fund's replenishment, with the Donors conference come soon to London. Every couple of years, a few health advocates try to influence half a dozen rich governments to increase their support for the GF's continued good work, an excellent model of efficiency among international institutions. As before, the lives of 50 million people struggling today to survive the pandemics of HIV/AIDS, Tuberculosis and Malaria are in the hands of a small number of professional health advocates and a few government officials. This practice of lobbying has previously succeeded in finding ways forward to increase the Global Fund's capacity each year to make grants, and to save lives. But this time, the cozy consensus behind closed doors approach is not working - donors are indicating that 'scale-up' is not on the agenda, and that far fewer funds must be used far more effectively. Although we agree with the call for more efficiency and accountability, we recognize, clearly, that the Fund needs its funds, in full.

There are probably more than ten million people who today, just another Thursday, have received their lifesaving treatment, and tens of millions of their family members who see tonight how access to appropriate care keeps their loved ones alive, and in better shape for tomorrow. Furthermore, there are surely many millions of clinicians, nurses and health workers, technicians, consultants, communications and PR specialists, advocates, researchers, pharmaceutical and medical product workers, NGO employees, procurement and shipping agents, ambulance drivers, accountants, and public health managers, to name a few, who make their living through funding that comes from Global Fund programs.

Patients get information at last - Freedom of Info Victory!

Interesting article that shows another way of how Freedom of Information can be beneficial for public health. Sadly, this is just in Europe but maybe one day Freedom of Information will be the norm everywhere.
- BRUSSELS – 11 / 8 / 2010 – Side-effects of medicines? So far a secret on European level, but now soon to be public thanks to a successful wob-request. Important Ombudsman argument on basic right to information, definition of documents and proportional work-load.
Your teenager is embarrassed about pimples. A certain pill is advised for help. But what if exactly the same pill causes your child to be depressive, even suicidal? Would you want to know? Should the public know?

Are you a "Key Actor" in TB and/or HIV in your country?

The Stop TB Partnership has commissioned the World Care Council to conduct a research study to determine the 'State of the Stakeholding' of a key Component of the Stop TB Strategy, Empower People with TB and Communities. Given the lack of data and insufficient reporting on this essential area, it is difficult to develop and support evidence-based interventions that can turn good words on paper into best practices on the ground. Understanding where we, the very broad TB community, are on the long road to 'greater involvement' will provide a more solid base of knowledge to build upon. But more than just an important research project, the methodology of this study is one that facilitates further between the all the participants, itself contributing to bringing together civil society, the public and private sectors in the response to TB and TB-HIV.

We are presently compiling the lists of prospects, considered to be the 'key actors' in India, China, Indonesia, Nigeria, South Africa, Bangladesh, Ethiopia, Pakistan, Philippines, and the DRCongo. We seek contacts from national programs, public and private providers, the business and educational sectors, NGOs, care givers, community leaders, PLHIV and TB patients to fill out a online questionnaire and be interviewed (5 minutes) by telephone. If you would like to be part of this innovative study, or can suggest some 'key actors', please contact me: menezes at worldcarecouncil dot org For more information on 'Taking the Pulse of Empowerment': http://www.worldcarecouncil.org/content/what-doesn%E2%80%99t-get-measure...

GIPA & GIPT: 2 Diseases, 1 Principle: Greater Involvement

Looking at the imaxi.org and the worldcarecouncil.org websites today there are posts on two separate but connected 'G' words. GIPT for people with TB and GIPA for PLHIV. Since TB is the biggest killer of PLHIV, and people with TB are usually from HIV very vulnerable communities, the two principles go readily together. Both are marginalized and suffer from discrimination and stigma. Both have rights consistently denied. Two Diseases, One Principle : Greater Involvement. I think we should consider a community strategy for HIV and TB that takes this into account.
http://www.unaids.org/en/PolicyAndPractice/GIPA/default.asp
http://www.imaxi.org/content/i-say-yes-gipa-desks-unaids-country-offices
http://www.worldcarecouncil.org/content/greater-involvement-people-tb-gipt
http://www.worldcarecouncil.org/content/new-job-reminder-gipt-consumers

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